This is Fibromyalgia on the Road

We have been on the road for two solid months. (The Stone Begins to Roll.) I can tell you now how this lifestyle is working for my health. Physically and Mentally.

First, I want to be straight up with you. RVing was an option the hubby and I found very appealing for us. The actual cost of living for full-time RVers is much less than living in a ‘sticks and bricks’ home. I think the ability to downsize dramatically was easier for us then it would be for a couple with children. We had less emotional attachment to our stuff. Finally, Jeff was willing and able to make a career change. Basically learning new skills to become a day trader that would allow us to become mobile. We can now live anywhere.

During the beginning of 2019, when we decided to get serious about selling our house, we began to do in-depth research about everything there was to learn about the RV lifestyle. I can not stress enough the importance of research! The information on the internet is vast. YouTube videos became our nightly news. We hit every RV Trade Show we could. Camping World became a second home. There is so much to learn, and it can be just that, learned! Heck, if we can learn it, you can too! No one is going to hold your hand, but it seemed everyone who currently RV’s is more than willing to help!

When we finally put our house on the market on August 1st, 2019, we knew we would not be able to make our September mortgage payment. I had a serious heart to heart with our realtor. He knew what the stakes were.

We used to be your average everyday middle-class couple. A few month’s savings in the bank. A two-car garage with his and her cars to fill it. We bought a city duplex, always adding an additional income to our plight. Then it all changed. President Obama started implementing his policies, and our life was simply turned upside down. Yes, the poor were cared for and insured and the middle class, most of it anyway simply disintegrated.

Our insurance rates tripled. Jeff was phased out of his high paying job, as were many because of the cost of healthcare per employee. Jeff took a much lower-paying job that was actually one of the highest paying jobs left in his field. Having a chronic illness is very expensive. I went through numerous hospitalizations and surgeries. My insurance company crumbled and closed. I had excellent insurance, then I didn’t. We paid three times more for health insurance and received less coverage. Medication costs skyrocketed under the new government. We somehow made too much money to qualify for medical or financial assistance through Obamacare. We just weren’t poor enough, yet. We quickly found ourselves not quite making it from check to check. We began the downhill spiral into credit card debt…

We sold our house in five days and closed in thirty. (This just does not happen!) We were extremely lucky.

Currently, it turns out my daily pain has decreased substantially. When we began RVing, I could barely do stairs. My pain was absolutely debilitating. I could not cook, I couldn’t stand that long as my back pain was severe. I could not physically do much of anything. Now the stairs are an afterthought. Cooking is convenient, even more so now that my hubby has time to grill! Cleaning the entire RV takes less than 20 minutes. I honestly can say I enjoy living in a space I can care for.

Mentally, in the beginning, it was surprisingly difficult to deal with. I felt a bit like an orphan with no place to call home. It’s a strange feeling. A bit unnerving. Luckily those feelings pass quickly! I am genuinely in the best headspace I’ve been in for years. I think the hubby would agree, and I believe he would report his own improvements as well!

We are now confident we will bounce back financially. We now live without fear of the next mortgage payment. We still have bills, but they are manageable! Physically I continue to improve. Yes, I still have bad days. Evenings remain very difficult for me. Going the entire day with almost no pain has been a gift! I am cautiously excited!

I know this isn’t everyone’s bag of chips for many reasons. That is OK. Control your surroundings and make your living area into space you can manage and enjoy.  What does that look like for you? That is the right way! Be kind to yourself, don’t beat yourself up. Life is hard enough. You are so much more important than stuff. Always.

Live your best life!


50 thoughts on “This is Fibromyalgia on the Road

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      1. Everything you said in your blog is so relatable. We are part timers but have RV’d in 24 places in the year we have had the Rig. Hoping to full-time in 2022. I feel better when I’m in the smaller space. It’s secure and it’s home. Thanks for allowing us to hear your story. Wishing you an amazing 2020.

        Liked by 1 person

  1. oh Kim, I am so very happy to read that you are doing better. thank you for the “review” of living full-tim in an RV – this is something my husband and I have talked about once the kids are gone…..but wasn’t sure if it would make me more ill or not………..but I have a feeling it would make things better. less to clean, less to take care of, less financial stress………..Thank you again! and YAY!!!!!!!!!!!!!!!!!! here is to more good days!

    Liked by 2 people

  2. In addition to congratulating you & husband for having the courage to do this, I find your story so interesting that I’m curious about a few things (if you don’t mind my asking):
    Do you own a piece of land which is your base when you’re not traveling? (I don’t remember if you covered this before, so if you did, please excuse me.)
    If you don’t have a physical address, how do you receive snail mail — a P.O.Box?

    P.S. Merry Christmas and a healthy and happy New Year.

    Liked by 1 person

    1. Hello! You can always ask me questions! We do have a lake home on a piece of property that was my fathers homestead. I am co-owner with my siblings. It is only to be used for vacations. One sister does reside on the property and manages it. Jeff and I sold our house in Minneapolis and only have the RV now. We are full time on the road. Since I own property, that is my mailing address. I pay my sister to send us our mail when we have access to mail receiving. There is a postal service for RV’er through a club called Escapees. Eventually we will set up our mail with this club. 😊 merry Christmas and Happy New Year to you and yours!

      Liked by 1 person

  3. Yeah, that program didn’t go far enough. Gotta up the taxes on the highest wages and provide quality, universal care. Some folks have 7 vacation homes they never see, others can’t pay their rent or mortgage because of medical bills. System’s flawed.

    Rant over. πŸ˜‰

    Glad you’re feeling better, Sister Kim! Road Warriors! ✊✊✊

    Liked by 3 people

    1. How about… get this… insurance just does what it was meant to… you use it when there is an emergency! We have gone to mostly cash only medical appointments. Not all! But some. Most are very affordable if you just write the check! Government doesn’t belong in my medical business. They can mind their OWN business! πŸ™„ I believe they have enough to do!πŸ˜‰ Yaassss Road Warriors! πŸ‘ŠπŸ»

      Liked by 1 person

      1. Insurance will never do what it’s supposed to as long as the motivator is profit. Gotta take the profit out of health care. Some folks might want vacation homes, lots of guns, a degree in botany, or prayer in school, but EVERYONE needs health care. When it’s something that everyone needs, we need to make sure everyone can get it, without terrible financial consequence.

        Keep on truckin’! πŸ€™πŸ€™πŸ€™

        Liked by 1 person

  4. You & Jeff make the best RV partners in crime. Honestly, I would be surprised if you didn’t find it challenging mentally at first because it’s a HUGE change and you’ve been through a hell of a time of things. This is a new chapter, and that obviously takes some adjusting to. Of course, you can pull that off with ease because you’re wonder woman so I never had any doubts. It’s just so, so good to hear that your pain has lessened and you’re in such a better headspace mentally. Keep being awesome guys! xxxx

    Liked by 2 people

    1. Wow! Thank you so much Caz! (If I ever need a publicist!)πŸ˜‰ Jeff and I seem to do pretty well… this has its challenges just like everything else but we are getting through! And it’s finally become fun. We know we are very lucky to be given this chance to live our life the way we want to! Very lucky.πŸ˜ŠπŸ’œ

      Liked by 2 people

  5. Such a great tale to tell!! I just have to say… And they lived happily ever after!! Your story reminds me of a book!!
    So happy for you both!! And yes I’m sure your stress level went way down!! Thus making you feel better!! Merry Christmas and a very Happy New Year!!

    Liked by 1 person

  6. Hi Kim! This was a very helpful and honest post. I needed that information right now, as you are also living my dream. I’m not sure how to transition my financial situation to afford it, but love all of the rest of it. If only I could figure out that one piece, I’d be right there with you. What a beautifully simple way to live, really live, and see the country. I know the pain of isolation is limiting my health and progress. I’m SO GLAD to hear you have settled in and are beginning to get a healthy rhythm for yourself. Our government doesn’t support chronically ill people and the system is set up so you must be bankrupt before any kind of help starts, and even then, the β€œhelp” is a bandaid not intended to save your life. You and your hubby have found a way out and I am so grateful for that! Please keep these posts coming. I know I can find a way to make this work if I just keep looking.

    Liked by 1 person

    1. Hi Tamara! Yep. You’ll find the key. If I knew a way, I’d share it. It tools us about 5 years to finally get all the pieces in place. However, that was unique to our situation. Dang! I wish I just had an answer for you. πŸ™ƒ yes the whole insurance fiasco. I’m just so sick of it all! But as I improve, I hope to have the energy to do something about it. There is a gal I follow on FB that is very active in Policies affecting chronically ill individuals. It all takes time and teaching. Thanks Tamara!πŸ˜ŠπŸ’œ


  7. Great read! I am so happy that the change has lessened your pain which is everyone’s goal with fibromyalgia. And, the scenery changes you get are so beneficial to your mental state. Fibro tends to lock you into your home and immediate area. The visual change is awesome!

    Liked by 1 person

  8. It’s great to read up on how you’ve been doing and how you did it!! This was a great post!! Your story, aside from the health insurance, reads just like ours. I had to stop working and it annihilated us. Our one saving Grace has been that we have and have kept great insurance. Thank God. Had Bri not worked for Verizon, we absolutely would have lost the house too. It’s heartbreaking to hear of so many of us that spiral this very same way-I’m sure this really hits home for many. All that said, I am SO happy for you and this momentous new beginning. Alleviating ALL that stress, is fantastic! I am so happy for you guys! Now you’re just a rambling rose, baby!! I’ve been so interested to hear all about this, Kim. Improving our circumstances so we can better enjoy life is something I think we all strive for. I wish you only the best with your best new life!

    Liked by 1 person

        1. No! Stace, I completely understood your message. A single hospital stay can bankrupt us! Good insurance is no joke. Yes, the changes I’ve been through have been … well, NOW great for me!πŸ˜† I agree that so many of us are on this rollercoaster of check to check and scared to death. Stop overthinking type A personality!πŸ˜†πŸ€£πŸ˜† I love your comment, BOTH of them! You are so funny!πŸ˜ŠπŸ’œ

          Liked by 1 person

          1. I just howled over this. RLOL OMG 🀣 So, clearly I can’t even hide my Type A behind a screen, huh? Takes one to know one, Kim?? πŸ€” Glad you got what I meant, sometimes I feel like I’m speaking dog. Time will tell if the dogs respond! 🐢 HA thanks for that HUGE laugh!!

            Liked by 1 person

  9. Gosh what a massive change. I am so happy that it is working out for you. I can’t imagine such a life. It is great you have Jeff. I hope it all improves for you both very soon.

    Hugs Kim.

    Merry Christmas and Happy New Year.

    Love Bella

    Liked by 1 person

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