Preparing for Closure.

Hello.

It has always concerned me when people leave the blogosphere without a goodbye. I want to say, my process to prepare for the closure of my blog is now underway. I am beginning my goodbye.

My mom died on Father’s Day of this year, 2020. She was 79. The hubby and I are currently in Seattle. I had purchased a plane ticket to fly home, but we are not allowed to have a funeral. COVID-19. We are not allowed to gather… etc.

I watched two televised funerals, men who died during altercations with the police. Both funerals were quite spectacular, attended by so many people! Important people.

My mom was not in an altercation with the police when she died. So we will quietly bury her in our small town cemetery with no official service, very few attendees, no important people.

There is so much information out there about Fibromyalgia Syndrome. New and exciting information. I follow many amazing bloggers! They are knowledgable and up to date! I am not in a place to bring more information to you, I’m just trying to survive and learn all I can. Trying. Not really succeeding with new information. Not willing to try new treatments any longer that could adversely affect what little health I have left.

I don’t want to be a cynical blogger. I am becoming disillusioned by so many things, I am becoming a crabby blogger! This, in turn, affects my health in negative ways…

It’s not you, it’s me. I mean this. I have so enjoyed being a part of this community. I have been so lucky to get to know each and every one of you. My time has come though, and I am preparing to say goodbye.

How can I help you before I go? What resources can I provide you with? Please let me know. I’ll remain present for a couple more weeks but I will be saying a permanent goodbye by the 15th of this month, July 2020.

I will continue with my FaceBook Page. http://fb.me/itrippedoverastone. I will provide fact-checked information to the best of my ability, I just will not be sharing any narrative stories of my own. (Edited 7-4-2020)

I began blogging in 2015. I have enjoyed it and hope I have been a positive person that you could read and discuss the many topics with. I wouldn’t have changed my blogging experience for anything!

(Maybe a million dollars… I’d probably take a hard look at that!)

No Pain Medication Allowed!

Hello.

It has been almost five months in my journey with no pain medication. How’s that working? Well, I’m still here. Many others are not. Their pain too great. Suicide rates are on the rise…

What is a flare like WITH the availability of a rescue pain medication, often called; The Evil Opioid?

A painful flare can be somewhat controlled and frequently curtailed with pain medication. The worst pain, treating it with an opioid, will last for two, possibly three days. At least for me. (Everyone is different). Pain medication allows you to get out of bed and function, appearing almost normal to friends and family. You will still be bedridden at the onset of a flare, but eventually, after a day or two of rescue medications, you will be able to carefully get up. You can join in life activities again with your pain levels decreased due to the opioid you take that was prescribed for you by your medical doctor. As your flare subsides, you taper off your rescue pain medication and prepare for the next excruciating episode. You are somewhat rested, mentally in a decent place, and the intense pain has subsided. You are ready to fight the next flare.

But.

What is a flare like WithOUT the availability of rescue pain medication (the evil opioid)?

This is a relatively common flare experience from what I’ve been told by others and what I, myself, go through;

The pain begins to go from the normal uncomfortable pain to the terrifying, body crushing pain. The intense pain that takes your breath away. There is no out. You know you’ll be in this amount of pain temporarily, but for how long can you take this extreme amount of pain? You are bed-bound but can’t sleep. If you attempt to get out of bed during this flare, you will more than likely lose your balance and take a tumble. You will probably pass out. (Yes, frequently I pass out from the intense flare pain.) You will be nauseous, you won’t be able to take deep breaths, you will cry. You wish you could just die. You take muscle relaxers, Tylenol, and Ibuprofen. Dumbs you down but doesn’t take away the pain. You take other over the counter medications you pray will help. You may try to use alcohol to self-medicate. The fog rolls in… you are experiencing cognitive difficulties now. Fibro Fog. You can’t put a sentence together, you get lost going from one room to the next. You are entirely unable to help yourself in any capacity. You may be on your way to the emergency room. (I don’t go anymore because I was called a ‘drug seeker.’) Finally, after one week or two… possibly more, the crushing pain ceases and regular pain returns. The fog lifts. You are physically exhausted, mentally spent, and dreading the next painful flare because it will come again. It always does…

But! You are opioid-free!

I haven’t been a medication abusing addict, ever. I’ve used opioids for twenty years, as directed, but what the hell do I know? I’m just an adult, chronic pain, patient. I read medication labels and follow those directions. (Yes, there are directions on every bottle, and they are quite simple to follow.) Now, I have had my access taken from me. Some individuals don’t follow the directions on the label. They take more than directed and/or steal them from those that have this medication prescribed for their pain. These abusers have ruined my right to access readily available pain management medication. I’ve been denied the fundamental right to medicine that provides me comfort, reducing the extreme pain I experience because of my diagnosis.

What’s the big deal?

So, I’m not going to die from severe pain just because I do not have access to pain management medications. This is basically a quality of life issue. Not having access drastically reduces my quality of life! These pain management medications are available! It’s like saying there are antibiotics you need to fight the flu, but you aren’t going to receive any because there are those who misuse this medication. There are too many people taking these antibiotics irresponsibly; therefore, you must suffer through the flu for as long as it takes. Realistically you get the flu once a year. What if you got it every month? Does that seem like a sound decision to deny you access to a medication that would curtail the severity? What would your quality of life be like? It would suck. That, my friends, is the big deal!

Does this make sense to anyone? We do not have an opioid problem in this country! We have an addiction problem!!! (Addicts also need the right kind of help with their disease.) The next time you hear about the ‘opioid epidemic,’ please speak up and set the record straight! 

img_0456~Kim

My Top 20 Cheaters!

Do you ever just get fed up? Get tired of being the ‘patient?’ Everyone looks at you as the ‘sick’ one, mentally and/or physically… depending on how cruel they want to be. Do you get tired of seeing one more specialist, reading one more study, purchasing one more book about your disease… Do you ever just stop and scream, “ENOUGH!”

I have not. That is, I haven’t screamed “enough!” I’ve wanted to! I was afraid my family would send the men in white coats to take me away to a ‘nice’ place to rest. I haven’t said it out loud, but I have reached; ‘enough!’ I’ll get over it; I suppose, but for right now, I’m so done with fibromyalgia!

I’m sick of being the ‘patient.’ I just can’t stomach one more doctor or another treatment plan! If I read one more research study about fibromyalgia, I with begin to tear the hair out of my head. If I hear about one more ‘cure’ I will start screaming and will not be able to stop. I am so done with being chronically ill! DONE! … but it isn’t done with me.

So… I put on my combat boots (yes I have combat boots, doesn’t everyone?) and I begin to think of all the things I’ve learned to use in the last 20 years to ‘combat’ my fibromyalgia symptoms. Since I am not an affiliate with any money making company, I decided to share the things I use. I’m straight up going to tell you what works for me, I call these things my cheaters. Maybe my cheaters will work for you, perhaps not.

*Remember, I am not a doctor nor do I play one on TV. I’m asking you to check with your doctor before using any additional over the counter (OTC) medications.

My Top 20 Cheaters:

  1. Vicks Vapor Rub. Cover your feet with the stuff and put socks on. Body discomfort, colds, congestion, allergies, toenail fungus… (10 days for the nail fungus to clear up). Your mother was right about Vicks Vapor Rub. This stuff works for just about anything!
  2. Essential Oils. Eucalyptus, peppermint, and lavender. Clears up the sinuses and has a calming effect. I use a diffuser. I also use one of those necklaces that holds a small ball of charcoal. You can put essential oils on the ball of charcoal. Some oil brands I like (and have researched) are Plant Guru, Sun Leaf, and there is a roller ball mix called CALM from farm to you. It not only clears my sinuses but helps my mood!
  3. Epsom Salt. I use some in my bath for sore muscles. This stuff is incredible! I also use this to soak my feet when they are painful. There is a fancy one that has lavender in it, and it is nice, but good old everyday Epsom Salt is key!
  4. Dramamine. This works VERY well for dizziness and nausea. If you get the original formula, it will calm you down. If you are already fighting drowsiness, get the less drowsy formula.
  5. Popsicles. Indigestion? Acid Reflux? I just switched from chewing ice after a meal, which works but is hell on your teeth to plain old popsicles. A bit softer on the teeth and work just as well. (If you are low in iron, many times you crave ice, this also helps with that craving.)
  6. Coca-Cola. There are days when eating is out of the question. Don’t reach for the ginger ale, Sprite or 7-up. Slowly sip a REGULAR Coca-Cola. Nausea will go away.
  7. Coca-Cola and a candy bar. Yes, you are reading this correctly. Use these items together if you are experiencing withdrawals from going off medication. I learned this trick from an addiction counselor I used to work with. Now if this is already a part of your daily diet, I’m sorry, this won’t work for you. But if you are not used to this kind of caffeine and sugar rush… it WILL work to ease up the side effects. You will get some much-needed relief.
  8. Magnesium. I take a liquid form. If you have fibromyalgia, you need to be taking extra magnesium. Period. (This is what I take and why.) Our bodies do not make enough. Google ‘magnesium’ and you will understand. Or read all about magnesium from Caz at Invisibly Me!
  9. B12 shots. B12 is another no brainer. (Google away, people!) I take an intramuscular shot. You can take the regular shots or get the vitamins. B12 is like the highway for your body to absorb everything else while it protects this highway too. You will feel less fatigued, less confusion, and overall better if your B12 levels are maintained.
  10. Generic allergy tablets. Calming.
  11. Tylenol PM. (Acetaminophen) Watch your doses! No more than 4,000 mg per day. Calming and takes care of headaches!
  12. Ibuprofen. You can take 800 mg at once, and this is the dose of a pain relieving pill you’d be given with a script. The goal is to not have to do this, but when you are in pain, you do what needs to be done. (Some should not be taking NSAIDs, check your prescriptions for adverse effects!) Always use caution.
  13. Handheld Massager. Restless leg sufferers, this cheater is for you! (Also…#14.)
  14. Weighted Blanket. I use a weighted blanket for Restless Leg Syndrome and anxiety.
  15. Nyquil. We all know Nyquil is our favorite knockout medicine. Use it when you need to. Sleep is healing.
  16. Therapy Belt. I use one for my lower back pain. Get one from Amazon. They are velcro and cost about $15. You should read the directions and always align your hips when putting on one of these belts. (If you have questions, I can help, just ask.)
  17. Clay heating/cooling packs. These are just super nice! Since they are clay, you can squish them and mold them to your body. Walgreens again… they carry these clay packs that can be heated up in the microwave or frozen.
  18. TENs Unit. If this works for you… buy one for yourself! The TENs unit doesn’t work for my fibro, but my husband uses one for his sore back. Not that expensive. Does not require a prescription. Available on Amazon and at Walgreens.
  19. Salonpas. These are little patches you can put on the exact spot you feel pain. (Choose wisely, they are medicated!)
  20. Drugs.com. Put this APP on your phone. It is free and easy to use.

Bonus cheater!!!

#21. A Medication Journal!

You really need to have a journal, especially for your cheaters. Write down what works and what dosages are best for you. Remember to record the medications you take and always the amounts! It doesn’t have to be pretty, just accurate.

Please leave any questions for me in the comment section. Use these cheaters as aids, do not use instead of a medication that is prescribed for you.

And finally, please remember;

 *I am absolutely not a doctor, nurse, or medically trained in any way, except in CPR and first aid! I can breathe the life right back into you while I bandage a head wound… but nothing else!

 

 

img_0992~Kim

Death Must Be Faced

I planned on doing Fibromyalgia Awareness posts all this month, every Wednesday. It was a sound plan. Then my parent’s neighbor died, she was very ill. This was expected but when it happened it was still sad. About two days later… my uncle died. He, too, was very ill. In fact, he was in hospice care, his kidneys were shutting down and he opted not to receive treatment. He passed very quickly after that.

I had been planning to take a week and spend it at our family lake home. It was all planned. My health had been questionable for some time and I was hoping a change of pace would help me over the last hurdle. However, two funerals in one week were not planned.

How was I going to get through these funerals?

Would I get through these funerals?

How was I going to be of any use to my parents, who are elderly, during this week?

Would I be able to follow through or fail again on my plans?

When you have fibromyalgia you don’t get better. You never get better. Fibromyalgia is a chronic syndrome. We say illness or disease but it really is neither. Fibromyalgia is a syndrome because it has many contributing coexisting conditions. These coexisting conditions tend to be progressive, worsening over time. But fibromyalgia itself is not a progressive ‘illness.’ (I am not the ‘syndrome’ word police!) This progression of symptoms is very confusing to those of us with fibromyalgia. For the rest of you, it must seem like a damn soap opera!

[Scene: Betty and Jan are talking about their friend Laurie; camera pans to Betty.]

Betty: Then Laurie said she had Fibromyalgia Syndrome and Chronic Fatigue Syndrome. But now she calls the Chronic Fatigue Syndrome some weird word; mya-lgic- encepha-something?

Jan: Myalgic Encephalomyelitis.

Betty: Which is it!?!? And what does THAT word even mean? I swear she made that up! AND Laurie says she has depression, migraines, restless legs syndrome, and [whispering] bathroom problems … how can one person have that much wrong with them?

Jan: I know! Like, go get it fixed already! 

Betty: At least pick one thing. Jeeze!

[Betty and Jan roll their eyes and sigh, end scene.]

The truth is, WE DO have that much wrong with us and many times much more! Take a peek at this sweet little list of possible coexisting conditions!

So, how did I handle my week at our family lake home? I attended everything that was planned. I rested when I could for as long as I could. I wore my therapy belt and snacked on protein-rich foods. I did my fibro exercises. Basically, I went ‘old school.’ I treated my body just as I had right after I was diagnosed with Fibromyalgia. I was very aware of every ounce of energy I spent and was meticulous with my medication. I called my husband frequently. I continued to check in with my tribe for support and received it with a grateful heart. I made sure I was mindful every day of the beauty around me …

 

I made it!

Live your best life!

img_0749-1~Kim

Moody Monday (Last Goodbye)

 

 Last Goodbye

denial prevails

the soundless pain

buried with compassion

an image of silence

identity secured

one frigid self

attentive will I be

secure I will remain

~k.Lynel

It’s ‘Come to Jesus’ Time! (No Bullshit.)

Do you know what ‘come to Jesus’ time is? It’s truth time! I’m sure you’ve had many of these types of discussions with your parents, children, spouses, etc…tell the truth and no bullshit allowed, no excuses. So here I go…

I’ve been in a mediocre flare for the last week. Just enough pain to put me in bed for a few hours a day. No fibro fog with this flare. Kinda makes it difficult as you are a-w-a-r-e of everything going on around you but you can’t participate. So… I am extremely agitated and trigger happy. DON’T FLINCH BECAUSE I WILL SHOOT! (Sorry for yelling.)

My doctor is quitting, she still hasn’t contacted me, and I’m thinking she won’t. My dogs need baths and haircuts, but it is 20 below zero daily! That’s not happening. What the hell happened to global warming? My husband and I had the “talk.” No. Not that one, the other one about money. The tricky part is to remember it’s just math, and numbers are black and white.

I thought it would be a good idea to refuse to pay my medical expenses for a nightmare hospital stay I experienced in September 2018. Last week a bill collector finally called, so I blocked the number (like that’ll fix the problem) and sent in a small payment. A VERY SMALL PAYMENT! (Sorry I yelled, again.) I have concluded this was not a good idea. I suggest you don’t follow my lead…

Then, the creme de la creme, I posted this on FaceBook:

IMG_0559

I figured if I wrote it by ‘Furiously Fed Up’ no one would know I was the one who wrote it. Brilliant! Yeah, that didn’t work. I believe it was my mom who first commented with “got it.” And then the commenters followed with concern. My bestie even called to make sure I was OK. I don’t recommend posting anything on Facebook when you are two days into pain killers. (Note to self!)

In the end, I know my flare will end. I will find a new doctor. I won’t shoot anyone. Talking about money is not a bad thing. I will end up paying the stupid medical bills. Most importantly, I was having a ‘come to Jesus’ moment and I meant every word by Furiously Fed Up!!!

Is it really only Tuesday?

Live your best life!

img_0581~Kim

 

Who Has Your Back?

The Issue:

You need a medical advocate.

Who will speak for you when you are vulnerable? What do I mean by vulnerable? Sick. Needing medical attention. In a fog. In incredible pain. It is import to find yourself a medical advocate; spouse, partner, sister, brother, parent, neighbor, friend. An advocate for situations when we are physically and mentally vulnerable, it happens to us all. When you find yourself in this kind of vulnerable position, ask someone you trust to accompany you to medical appointments. If you are admitted to the hospital, you need an advocate to be with you for the first few days you are in the hospital.

You may need more than one advocate. I currently have two, my spouse and a social worker. You can find a social worker through your health clinic’s website. Since the clinic pays their salary, there is no additional cost for his/her services. My spouse handles the medical visits, and in-patient hospital stays. My social worker helps me with my medical paperwork. Signing up for coverage, coverage issues, and billing questions.

My Goal:

I will always be prepared for hospital visits.

The last time I was admitted to the hospital, it didn’t go well. My husband was on his way to the hospital, but he can’t be with me 24/7. He has to work. A situation came up, and I needed someone immediately when things went from bad to worse. I have been reliving this nightmare. I will never allow myself to be so mistreated again when I find myself at the mercy of others while I am sick and so incredibly vulnerable. 

The Outcome:

I found forms to assist all of us when we are dealing with hospital personnel.

I found the Chronic Pain Disease and Palliative Care Forms that you can get your primary doctor, even your nurse, to fill out. You can get your copy hereI have updated my medical paperwork to include the fact that I am a chronic pain patient and list the medications I am prescribed and need to receive, to combat this disorder. I keep copies with me at all times. You never know when you go from having an ordinary day to needing medical attention.

Additional Task:

On site patient advocates are available.

The one other resource I have overlooked and want to share with you is the in-house hospital social workers, called patient advocates. They are on-site. Their hours vary. But you may ask for one at any time during your stay! It is in the ‘patient bill of rights’ that we may request a patient advocate at any time. This is a resource that is underutilized. We don’t think about this when we are in a vulnerable state. If you find yourself alone in the hospital, request a patient advocate.

Question:

My question is how to remember to do this? When we are in a crisis state, we often forget the simplest things! How can we remember to request an advocate? Write it in our medical papers? Make “I want a patient advocate” cards to keep in our wallet? What would you suggest?

IMG_0454~Kim

Here are Your Chronic Pain Disease and Palliative Care Forms!

Do you suffer from a chronic pain disease? Is there no cure? Then you should fill out the Chronic Pain Disease and Palliative Care Certification Form. 

A while back I wrote about a trip I had taken to the Emergency Room. I was diagnosed with pneumonia and admitted to the hospital to receive IV antibiotics. I was treated with those antibiotics and Tylenol. My chronic pain was not addressed. I was in agony, not from pneumonia but from the chronic pain of fibromyalgia.

I was medicated in the emergency room for chest pain. Once I was moved into a hospital bed, there would be no further medication for the pain I was experiencing. My fibromyalgia went into a full flare due to a voluntary test I allowed them to run on me as a ‘teaching’ protocol.

Four doctors arrived in my room and asked to administer an ultrasound on my back to get pictures of my lungs. I agreed to let them do the ultrasound because I believed it would be a less invasive test and other patients may benefit from it. Bad decision. After allowing four doctors to deeply press the ultrasound device all over my back, the myofascia bruised and pain signals were activated throughout my body causing a very painful flare.

I told the admitting doctor that I would need to be treated for my chronic pain. I still didn’t realize the ultrasound had caused the flare at this point, all I knew was I was in a LOT of pain. She denied my request for pain medication, she refused to contact my primary doctor, and she stated I’d need to see a pain doctor on site. This pain doctor had left for the day and wouldn’t be returning until the next day after 5PM. It was 11AM…

The next 30 hours were unbearable… I still cannot talk about what I went through, and I cannot repeat the names I was called. It was terrifying and traumatic.

Never again. I will not ever let this happened again.

I found the Palliative Care Forms I was searching for! A man named Dr. Kline does so much for the chronic pain community. It was after listening to him I learned “Palliative Care,” and “Hospice” are two separate entities. Usually, when we think of hospice, we think of palliative care plans, but this need not be the case. Chronic pain patients are entitled to pain management. We are not drug seeking lunatics. We are not part of the so-called ‘opioid crisis!’ We are people who have an unusually high tolerance for pain medication because we are continually releasing pain-relieving substances our bodies naturally contain because our brain is merely responding to constant firing pain receptors.

Download and print out your Chronic Pain Disease and Palliative Care Certification Form. Your doctor, nurse practitioner, even your nurse can fill this form out, and you can keep a copy with you at all times!

I want to know how these forms work for you! If you have one of these already in place, please let me know if it has been useful! We may have more work to do, but this could be a step in the right direction!

IMG_5013~Kim

A Shame Filled Entitlement

Social Security is a Federal program we pay for every day of our working lives. I started working when I was 15 and paying into Social Security. I looked at those steep payments being taken from my check every week as a savings plans for retirement. I also knew in case of injury, I was paying into Social Security so it would be available for me if the need ever should arise. Just like having insurance on your home, car, and your very own life, this was a safety net. In the end, I needed it, and I am on disability.

Is social security an ‘entitlement’? Hell no! I paid into the program!

Why am I still so embarrassed to tell people I am on disability? Are you on disability? Are you comfortable with that? Tell me if you are because that is one thing I can’t shake, the shame I feel for taking checks from the government for a monthly payment. The disability checks are not near enough to live on, let alone pay for the needed medical attention due to the injuries that put me on this very program! People making minimum wage make twice what I do in a month and that was before the $15.00 per hour minimum wage went into effect. I used to work at McDonald’s, I’d have no qualms about going back to work there now and claim my $15.00 an hour … but I am not physically able. I am disabled!

It sucks being on disability. Calling it an entitlement only worsens the stigma. I am already filled with shame. I blog, I admin a facebook support page because it makes me feel that I am somehow earning that check; that disability payment. Does that even make sense? To me it does. I was ‘medically released’ from a job I loved. I enjoy helping people and answering their questions so blogging and admining a support group makes sense to me. Giving back and earning that government check …

I finally have an answer to the dreaded question, “What do you do for a living?”

FullSizeRender 99

I am an advocate for fibromyalgia awareness, I published a book, I am a blogger, and I admin a support group. That is my identity. My reality is that I fight the fibromyalgia pain demons every day, take my medication as prescribed, and research every aspect of my health for answers. I fight the chronic fatigue and try to keep a clean house and a satisfied husband. I fight the sleepless nights and exhaustion every day to check in with my group and write a blog. I don’t always win, but I fight.

And, I forgot to mention, I receive a check from the Federal government from a program that I paid in to… there should be no shame in that.

IMG_0250~Kim

The Pineapple Persuasion

I’ve decided I like pineapples. No, I really do! I like the way they taste. Sweet. (Get your mind out of the gutter perves.) I like the way they look, prickly on the outside, with a crown on top! I love the colors; yellows, oranges, and greens…

I buy pineapples, I eat pineapples, I decorate with pineapples. I love pineapples!

pineapple-supply-co-65674-unsplash

A pineapple, according to my husband, is me. I wear a crown. (If he is King of his Castle, I am his Queen!) I am prickly on the outside but sweet on the inside (once the core has been removed). The darn core has been somewhat of a buggar to deal with as of late.

I see my core as holding all my preconceived notions. All ‘etcetera’ interests, and ideas, everything stored for examination at a later date. All to be processed as true or false, some preconceived notions of illness behaviors, some judgments… it’s all there, in this core.

The meat of the pineapple, the sweetness, that’s me. That is me and how I try to see the world! Without the tough exterior, I wouldn’t last very long… and anyone could crush me, eat me up! No, I have a hard shell, protecting my sweetness. The shell must be removed to get to this part, the sweet part.

My crown stands tall and green. It is lovely, strong and can topple over and still maintain its proper place on top of my pineapple.

But alas, the core had to be removed. For all its protection, too many ideas confuse the pineapple, and the core will end up eating away the best parts of the pineapple. Turning the sweet to sour. The ill-fated preconceived notions turn random false facts into truths. No, No. This, we can not allow.

Screen Shot 2018-02-25 at 12.48.43 PM~Kim

 

Put on Your Big Girl Panties and Deal!

I am battling through ‘something’… a new stage of fibromyalgia? Is this a 50 + club I have inadvertently joined? I have 2 decades of experience with this disease. Does anyone have a third decade under their belt? Did you notice any changes in your third decade? Anything that should be added to the Stages of Fibromyalgia?

So far this is what I am noticing, anyone else please chime in!

  • Just fatigue? Hell no, this fatigue has laid me out for two straight days, close to 48 hours of sleep! An infrequent hour awake here or there.
  • Increased pain. Yep. Maybe because I am not moving around as much? Mr. Pain had definitely laid claim to any waking hours I can grasp.
  • This disease is throwing me a curveball! I never swing at a curve… I may have to adjust my thinking.

This is the cruel part of fibromyalgia. If you are cognizant of the changes your body is going through it is scary, and worrisome. Is this a new symptom that will remain permanent? Am I losing my awake time? My productive time? I am losing days, not hours. Is this a stage I must go through? God help me, I am afraid.

If you are in a full-fledged fibro fog, it is not so scary. (I swear I’ve never wished for fog until this week.) It is scary for those who are observing us. Our poor caretakers. We are mimicking the first stage of fibro, all we do is sleep. For those of us who are in a fog while we flare, we kinda get off easy, we don’t remember much. We simply can’t remember.

I have started a Hemp Salve for pain. I am not going to write too much about it IMG_5021because I need a bit more time with it. So far, works on back pain, arm pain and settles restless legs ‘a bit.’ Definitely more pros than cons. Monday I will call to get my Medical Marijuana Card. I have been eligible for some time but just haven’t wanted to take that step. It Is Time.

 

 

 

Change is scary.

IMG_0390~Kim

Nothing More.

I am a blogger. A simple blogger that happens to have fibromyalgia and a few of its cronies. I blog about chronic illnesses, mostly fibromyalgia. Sometimes a few additional “surprise!” pieces come together and grace this blog. But. I am a blogger. I just want to blog. I have things to say. I have “opinions.”

I run a Facebook support group. A group of women who have come together to question, answer and share about anything really. If you have an issue, we will do our best to help. Other strange things that come up are discussed. Basically, nothing is off topic. It reminds me of a quilting bee, each member presents a handmade square, and when we start sewing these beautiful squares together, we have a magically woven quilt of beautiful stories and tales. We are a part of something! I am an admin of a wonderful group of women who make my day, every day.

I also run a page on Facebook. I repost my blogs on that page as some find it too difficult to find my blog on WordPress. There is nothing wrong with that. Who isn’t tech savvy? Me. (I surprise myself most days!) If I can make someone’s day easier by merely posting my blog in two formats, then that is what I will do. I run a facebook page for my blog posts. That is all.

It got crazy for me a bit. I said “yes” when I should’ve said “no.” I signed up when I should’ve hit delete! No one’s fault but my own… my responsibility to make things right again… I have and I did.

I am a blogger, nothing more.

IMG_5013