Preparing for Closure.

Hello.

It has always concerned me when people leave the blogosphere without a goodbye. I want to say, my process to prepare for the closure of my blog is now underway. I am beginning my goodbye.

My mom died on Father’s Day of this year, 2020. She was 79. The hubby and I are currently in Seattle. I had purchased a plane ticket to fly home, but we are not allowed to have a funeral. COVID-19. We are not allowed to gather… etc.

I watched two televised funerals, men who died during altercations with the police. Both funerals were quite spectacular, attended by so many people! Important people.

My mom was not in an altercation with the police when she died. So we will quietly bury her in our small town cemetery with no official service, very few attendees, no important people.

There is so much information out there about Fibromyalgia Syndrome. New and exciting information. I follow many amazing bloggers! They are knowledgable and up to date! I am not in a place to bring more information to you, I’m just trying to survive and learn all I can. Trying. Not really succeeding with new information. Not willing to try new treatments any longer that could adversely affect what little health I have left.

I don’t want to be a cynical blogger. I am becoming disillusioned by so many things, I am becoming a crabby blogger! This, in turn, affects my health in negative ways…

It’s not you, it’s me. I mean this. I have so enjoyed being a part of this community. I have been so lucky to get to know each and every one of you. My time has come though, and I am preparing to say goodbye.

How can I help you before I go? What resources can I provide you with? Please let me know. I’ll remain present for a couple more weeks but I will be saying a permanent goodbye by the 15th of this month, July 2020.

I will continue with my FaceBook Page. http://fb.me/itrippedoverastone. I will provide fact-checked information to the best of my ability, I just will not be sharing any narrative stories of my own. (Edited 7-4-2020)

I began blogging in 2015. I have enjoyed it and hope I have been a positive person that you could read and discuss the many topics with. I wouldn’t have changed my blogging experience for anything!

(Maybe a million dollars… I’d probably take a hard look at that!)

The Opioid Crisis? A Lie. Suicide Due to a Lack of Pain Management? Very Real.

All of the following information is available on many sites on the internet. The National Health Association, the World Wide Health Organization, the CDC, and etc. You should just google suicide rates. I knew as medication was withheld, my people would choose not to live. It is happening! We are losing our chronically ill brothers and sisters at an alarming rate.



This is what I found…

 

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Rest in Peace.

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Enough. My heart is tired. If you are not a chronic pain patient, you should not have any say regarding our medical methods to suppress our pain.

~Kim

The Fibromyalgia Cure? OK, Let’s Talk About This…

There is a NEW cure for fibromyalgia plastered on FaceBook! Yep. They have done it! AGAIN! Another cure for us fibro sufferers, for crying out loud! It is about time!!!  (Really?) Well, let’s talk about this…

Here is the hook…

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Ok. There is a blood test called the FM/a to diagnose fibromyalgia. This is real. Your insurance, whatever that may be, will cover the cost of this blood test.

What does the FM/a test for? (Researcher-speak) This is a multi-biomarker-based test that analyzes your immune systems’ white blood cells’ chemokine and cytokine patterns. People with fibro have an irregular pattern regarding these proteins. 

What does the FM/a test for? (Kim-speak) This test measures the proteins in your body that increase when you are ill. These proteins increase your white blood cell count considerably to fight the likes of the flu, mono, infection, etc… These measurements should prove to be erratic if you have fibromyalgia.

Next, here is the theory ‘MOJO’ statement…

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The theory ‘MOJO’ statement is a promise to be admitted to their clinical trial if you test positive on the FM/a blood test.

(Researcher-speak) Take the FM/a test.

(Kim-speak) Do not rule out being tested for the FM/a test, just don’t be first in case its a deciding factor in the treatment you are allowed to receive! (This is not a one-size-fits-all illness!)

The result in this proposed theory will be a cure for the incurable… AND (drumroll!) they have the ONLY cure!

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Just what is this cure? It is the TB vaccine. Period. Will this work? I haven’t researched one case where it has worked. I have not studied one case where it has caused any harm. Go ahead and research the TB vaccine and see if you think it may hold promise for your ‘type’ of fibromyalgia. Go ahead and get the TB vaccine if you think it might work. Just ask your doctor to administer the TB vaccine. The cost is low, the vaccine is available. There is no need for such a cryptic message of a wonderous ‘cure!’ I trust YOU to make the best decision for YOU!

(Researcher-speak: More money…)

(Kim-speak: It’s a stupid $7 TB vaccine, get it if you want to!)

Always live your best life!

~Kim

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No Pain Medication Allowed!

Hello.

It has been almost five months in my journey with no pain medication. How’s that working? Well, I’m still here. Many others are not. Their pain too great. Suicide rates are on the rise…

What is a flare like WITH the availability of a rescue pain medication, often called; The Evil Opioid?

A painful flare can be somewhat controlled and frequently curtailed with pain medication. The worst pain, treating it with an opioid, will last for two, possibly three days. At least for me. (Everyone is different). Pain medication allows you to get out of bed and function, appearing almost normal to friends and family. You will still be bedridden at the onset of a flare, but eventually, after a day or two of rescue medications, you will be able to carefully get up. You can join in life activities again with your pain levels decreased due to the opioid you take that was prescribed for you by your medical doctor. As your flare subsides, you taper off your rescue pain medication and prepare for the next excruciating episode. You are somewhat rested, mentally in a decent place, and the intense pain has subsided. You are ready to fight the next flare.

But.

What is a flare like WithOUT the availability of rescue pain medication (the evil opioid)?

This is a relatively common flare experience from what I’ve been told by others and what I, myself, go through;

The pain begins to go from the normal uncomfortable pain to the terrifying, body crushing pain. The intense pain that takes your breath away. There is no out. You know you’ll be in this amount of pain temporarily, but for how long can you take this extreme amount of pain? You are bed-bound but can’t sleep. If you attempt to get out of bed during this flare, you will more than likely lose your balance and take a tumble. You will probably pass out. (Yes, frequently I pass out from the intense flare pain.) You will be nauseous, you won’t be able to take deep breaths, you will cry. You wish you could just die. You take muscle relaxers, Tylenol, and Ibuprofen. Dumbs you down but doesn’t take away the pain. You take other over the counter medications you pray will help. You may try to use alcohol to self-medicate. The fog rolls in… you are experiencing cognitive difficulties now. Fibro Fog. You can’t put a sentence together, you get lost going from one room to the next. You are entirely unable to help yourself in any capacity. You may be on your way to the emergency room. (I don’t go anymore because I was called a ‘drug seeker.’) Finally, after one week or two… possibly more, the crushing pain ceases and regular pain returns. The fog lifts. You are physically exhausted, mentally spent, and dreading the next painful flare because it will come again. It always does…

But! You are opioid-free!

I haven’t been a medication abusing addict, ever. I’ve used opioids for twenty years, as directed, but what the hell do I know? I’m just an adult, chronic pain, patient. I read medication labels and follow those directions. (Yes, there are directions on every bottle, and they are quite simple to follow.) Now, I have had my access taken from me. Some individuals don’t follow the directions on the label. They take more than directed and/or steal them from those that have this medication prescribed for their pain. These abusers have ruined my right to access readily available pain management medication. I’ve been denied the fundamental right to medicine that provides me comfort, reducing the extreme pain I experience because of my diagnosis.

What’s the big deal?

So, I’m not going to die from severe pain just because I do not have access to pain management medications. This is basically a quality of life issue. Not having access drastically reduces my quality of life! These pain management medications are available! It’s like saying there are antibiotics you need to fight the flu, but you aren’t going to receive any because there are those who misuse this medication. There are too many people taking these antibiotics irresponsibly; therefore, you must suffer through the flu for as long as it takes. Realistically you get the flu once a year. What if you got it every month? Does that seem like a sound decision to deny you access to a medication that would curtail the severity? What would your quality of life be like? It would suck. That, my friends, is the big deal!

Does this make sense to anyone? We do not have an opioid problem in this country! We have an addiction problem!!! (Addicts also need the right kind of help with their disease.) The next time you hear about the ‘opioid epidemic,’ please speak up and set the record straight! 

img_0456~Kim

What Did You Say to Me? (Trigger Warning)



“I wish I had time for DIY stuff. If only I had the time to do what I WANT like you do. It must be nice.”



Really…?

Yep, this came at me again! Sheer stupidity or fundamental lack of understanding? I honestly do not know. I’m trying not to let it piss me off. I’m losing! Here comes a rant…


TRIGGER WARNING; RANT. STOP HERE.


So, yes, person(s). I have time to make shit and write shit. You don’t? Then maybe you need to excel at your job and not worry about what I get to do. That’s right. You do you, I’ll do me.

I was terminated (fired!) from my job for medical reasons. I did not decide to ‘just quit.’ I have a damn college degree! I had a career! I was a passenger in a stupid car accident that created this fibromyalgia, chronic pain, PTSD world I now live in. I didn’t seek it out, I didn’t ask for it. I can’t just think it away, or I would have…

I get disability ‘income.’ You think your taxes pay for my disability income? I paid into this system, too! Since I was fifteen years old, I have paid into the Social Security system. In fact, I’m still drawing FROM the real income I personally have paid into Social Security. I don’t answer to you. So I make shit and write shit.

Just for you, here is some added information you may want to consider. When you are in chronic pain, your brain is very busy with the task of pain management. It begins to act like a one-trick pony, forgetting it needs to manage more things than just pain. I write because it is mind work. I make things because it is mind work. I have to exercise my brain. I have to channel my mind away from pain… there is no cure for chronic pain.

Would you like to see my medical bills?

Would you like to read my diagnosis?

Would you like to pay for my medical expenses for one lousy month?

Be sure to let me know. I have it all! All the documentation your little heart desires. Yet, I still find the time to make shit and write shit! (I too, wish you “had time…”)

I hope you never have to experience what I have had to experience. I hope you never have time to make shit and write shit. Honestly, I do not wish even a moment of pain for you. My only hope is that you would get educated and watch your tongue until you are.

Finally… I want you to know I will never, EVER, even think of you again.

RANT over.

 

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Talking Bluntly about Night Time Chronic Pain

September is National Pain Awareness Month.

I have a chronic pain disease called Fibromyalgia Syndrome.

You can read what fibro is: here.



(This is a typical night for me. I describe it as follows.)

I think the hardest thing for a person with chronic pain is to tell you how they are doing. (Seriously.) You ask me how I’m doing… really? Let me start by asking you, “do you really want to know?” (Probably not, sometimes maybe?)

When you ask me how I am? “I’m fine.” (That’s a flat out lie!)

I’ve read a few posts where bloggers are addressing pain, chronic pain. They are describing what pain we face and what that looks like because September is Pain Awareness Month. My friend, Terri at Reclaiming Hope describes a typical morning for a person with chronic pain. Terri could have been describing my mornings. You can read her story: here.

I will tell you what a typical night feels like for me.

It begins at about 5PM. I get very tired and extremely agitated. My evening will be filled with aches, pains, and irrational episodic thoughts… I will question my worth in this world.

I try to stay out of sight as the early evening turns into the late evening. I know bedtime is coming and without something to keep my mind occupied, it’s going to be a very long and painful night. The clock says it’s bedtime, as I crawl in, it begins. Pain. Unrelenting body pain!

I may be successful in falling asleep on my own, typically not, then I rely on a medication for sleep. My ears feel full of pounding blood. My legs feel so heavy I want to get a knife and stab them until I feel relief! My hip feels like my leg has fallen out of the socket, and my lower back starts to spasm. But these pains are the easier ones to deal with… it gets much worse.

Are you still with me? Have I shared too much? It’s very possible you are bored or feeling somewhat miffed! After All, you are an intelligent person. You certainly can tell if another person is in pain. Well, I don’t look sick! I might look tired, but not sick. I am in real pain every single day.

The night continues, and by this time I have been up at least three times. So here we go again as the next symptoms have their turn with me…

My arms will start jamming up, causing shooting pain throughout my elbows, upper arms, neck, head, and shoulders. As I try to relax, I’m often jolted back into my harsh reality by shooting pain. I try to hold myself tightly as it feels like my body is being pulled apart by some malevolent being. This is very unsettling not to mention extremely (yes) painful!

After diagnosis, a few years into my illness, I became basically bedridden. At the beginning of my relationship with my future hubby, I would be awake about four hours a day. That was it. My normal. I could push through a day once in awhile. I made sure to spend that precious ‘awake time’ with Jeff. Then this disease turned upside down on me. I now get maybe a total of four hours of sleep at night. This lack of sleep causes me to lose days! I am mentally a train wreck and physically spent and in pain.

But. You ask how I’m doing?

“I’m fine.”

September is Pain Awareness Month!

One of Many

Fibromyalgia Syndrome. Two to four percent of the US population is affected by fibromyalgia, that is six to twelve million people. Females make up 90% of those numbers.

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Hi, I’m Kali, I was diagnosed at age 18 with Fibromyalgia Syndrome in 2015.img_1290

I just recently got engaged. I’m looking forward to having a happy little family with my fiance and our future cat children. I’m a chronic illness blogger and a bookworm, never without a book in my hand. Writing and reading for me serve as a good distraction from the pain. I am one of many that suffer in silence because of the stigma that comes with this disease. There is a point that some people reach, afraid to talk to their doctors thinking suicide is the better option to stop the pain. It is not. It will get better. Actively seeking out friends with fibro makes things better, not perfect but better. I live with daily chronic pain … I am one of many.

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Hi, my name is Jill. I was diagnosed in 2016 with Fibromyalgia Syndrome. img_1298

I live in Tennessee and have two boys and three dogs. I like writing letters. I currently have eight penpals. Now, there are eighteen people with chronic illnesses that I send cards in the mail to. Hopefully cheering them up. It is the little things that I find to do for people that give me a sense of accomplishment. I live with daily chronic pain … I am one of many.  

 

 

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Hello, my name is Margie, I became noticeably ill in 2004 and was finally diagnosed with Fibromyalgia Syndrome in 2009.img_1462

I am 64 and have been widowed for 20 years. I live in Oregon with my daughter and several dogs and cats. I love quilting, but my clingy bitchy fibro leech does not! Now I have a hard time working on anything. I do read a lot. I find if I don’t move around much, she is content. I live with daily chronic pain … I am one of many.

 

 

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Hello. I am Mary (Mol), and I was diagnosed with Fibromyalgia Syndrome in 2017.img_1433

I am happily married, and we live in West Clare, Ireland. We have two chocolate labradors, Max and Loki. I’m a blogger newbie. I love to write, read, and watch tv. I live with constant daily pain … I am one of many.

 

 

 

 

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I’m Jody. Hello! I was diagnosed with Fibromyalgia Syndrome in 1995.img_1452

I am married to a super supportive husband! We have four dogs and live in the dusty desert of Texas, where the expansive night sky feeds my astrology addiction. I’m a proud mother of two grown sons, a bonus daughter, a beautiful granddaughter and a grandson who will arrive in September! I live with constant daily pain … I am one of many.

 

 

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I am lucky enough to call these women my friends. After being diagnosed with Fibromyalgia Syndrome in 2001, I fully understand the fighter mentality it takes to be a Fibro Warrior, and these women are the definition!

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Hello. My name is Kim. I also live with constant daily pain … I am one of many.img_1292

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The House on Taylor Street (Looming House Inspection)

This is where I try to sound like I know what I’m doing, but I really only have a 50/50 shot of coming out of this unscathed. Right now, it is 5:14 AM. Neither the hubby nor I can sleep any longer. The day of the home inspection is here! A man who literally holds the key to Jeff and I being able to sell our home in two weeks arrives at 10AM. I feel the left side of my chest tighten, the acidity of bile burns the back of my throat… I am terrified.

We never got our bathroom finished. We’ve lived in this house for 14 years. The beautiful artsy neighborhood referred to as the Arts District in northeast Minneapolis. The day we signed our mortgage papers, we knew there were three things we wanted to do. We planned to pull the carpet, hardwoods were underneath and the white oak needed to be given back some life! The bathroom, I wanted that subway tile with a black and white checked floor for as long as I could remember. The beauty of buying an old home is the restoration of it. Our house was built in 1907. We knew we would paint the interior, the exterior was a scrumptious buttered cream stucco. (You thought I was going to say remodel the kitchen… no, maybe a different countertop?) I loved the big weird kitchen. The corner sink, gas range, empty corners that would allow me to display some of my treasures! The kitchen was ugly, but it was my kind of ugly!

In June of 2006, the hubs and I moved into our big stucco duplex, with big dreams and high hopes for the future of whatever was to come! The first chapter of our life together as husband and wife.

This is my account of life in the house on Taylor Street … warts and all!

(To be continued… whenever an opportunity presents itself.)

Always choose to live your best life!

As per your request, The House on Talor Street (My Ugly Kitchen)

img_1453~Kim

The Chronically Hopeful Award

Brigid over at Watching the Daisies  was kind enough to nominate me for the Chronically Hopeful Award. There is no way I can express what Brigid means to me, I will let her own words tell you who she is and have to leave it at that.

Brigid P. Gallagher is a retired natural medicines therapist, passionate organic gardener, and author of “Watching the Daisies- Life lessons on the Importance of Slow,” a holistic memoir dedicated to the art of mindfulness and healing from a debilitating illness.

The Chronically Hopeful Award has been created by Pamela, “to recognize the incredible people who blog about chronic illness, mental health, and disability.”

The rules:

  • Thank your nominator
  • Recognize Pamela from There Is Always Hope as the creator of this award and link her URL – https://pamelajessen.com
  • Use the Chronically Hopeful Award logo somewhere in your post
  • Copy these rules onto your post
  • Answer your nominator’s questions
  • Write 5-10 of your own questions (they don’t need to be illness-related)
  • Nominate 5-10 other chronic illness, mental illness, or disability bloggers
  • Comment on each of your nominees’ latest posts to tell them they have been nominated.

Brigid’s Questions for Me:

  1. What advice would you give to a new blogger?

Just write. Be real. Write about your day, your ideas, what you hope to achieve, what your dog did! Don’t worry about perfection. Don’t worry about followers. I know its tough to look at other peoples blogs and see the number of followers and the number of comments. But believe me, you will end up reblogging many of your old posts, probably yourself. Once you get the hang of the style of blogger you hope to become, you will go back an re-do your first few posts. (I PROMISE you… it’s true!) For now, write and visit other blogs! Comment and don’t expect anything back. Reach out to one or two bloggers for advice. A little mentorship never hurt anyone. Blogging should be a way of expressing yourself, some use it as a ‘platform,’ and that is not my kind of blogging. I like to feel a sense of accomplishment when I get done with a post. Period. End of story. 

2. How has blogging changed your life?

Oh my! I don’t know if I can count the ways. I adore blogging, and I live for the communication that I receive from it. The blogging community welcomed me, and I now have a sense of belonging to something much better than I could have ever dreamt of. I love my tribe!

3.  What is the biggest lesson you have learned about your own health condition, that you wish you had learned sooner?

 

The reality is that no matter what I learn and how much I move forward, there are still people in my life who do not care to move forward with me. My Fibromyalgia Syndrome is chronic, it is here to stay! I was caught off guard at how much this certainty has turned some against me. (No, I am not going to “beat” this one.) It doesn’t matter how much I fight back, there is never a winner. I have to say that is the biggest lesson, about living with a chronic illness, I have learned and definitely needed to.

4.  What hobbies do you enjoy?

Well, I like hobbies that are tangible. I like to write, so I wrote a book! The Shadow Boxers, Fighting Fibromyalgia, Your Personal Journal. This is an interactive journal and the first, ever, published on Amazon about Fibromyalgia Syndrome. I am so proud of that! I believe my book is a useful resource for anyone with fibro no matter where in life you are with your illness. My co-writer and I wanted to offer options, not opinions. It is definitely not a ‘how-to’ book.

5. What dreams do you still want to fulfill?

Well! (Remember that tangible thing I have going on with me.) I have always wanted to travel. I love it, but I thought once I got sick, that part of my life was over. The hubby and I have been working towards becoming mobile so we could start traveling fulltime in an RV. It is now happening! Our house goes on the market on August 1, and upon that sale, we are ready to purchase our rig and start off on a new adventure! Crazy cool. We can finally see the goalie, and it looks like it’s all net!

XXOO

Thank you, Brigid! I am truly honored to accept this award.

Now my nominees, and my five questions for them:

Caz at Invisibly Me

Wendi at Simply Chronically Ill

Mer at MerBear’s World

Wendy at Picnic With Ants

Karen at MS graceful…NOT!

  1. At what age were you were diagnosed?
  2. What were your first thoughts after you received this diagnosis?
  3. Do you think chronically ill people are expected to behave a certain way when they are in public?
  4. What is the biggest misconception about your illness?
  5. Have you seen any significant strides in the treatment for your illness? 

I’m looking forward to your answers. You have been given this award from me. I hope you have time to accept and answer the questions. Either way, you are phenomenal bloggers! I count myself lucky to have come across your site, more importantly, your friendship. All of you truly deserved to be recognized!

 

 

 

img_1129~Kim

My Top 20 Cheaters!

Do you ever just get fed up? Get tired of being the ‘patient?’ Everyone looks at you as the ‘sick’ one, mentally and/or physically… depending on how cruel they want to be. Do you get tired of seeing one more specialist, reading one more study, purchasing one more book about your disease… Do you ever just stop and scream, “ENOUGH!”

I have not. That is, I haven’t screamed “enough!” I’ve wanted to! I was afraid my family would send the men in white coats to take me away to a ‘nice’ place to rest. I haven’t said it out loud, but I have reached; ‘enough!’ I’ll get over it; I suppose, but for right now, I’m so done with fibromyalgia!

I’m sick of being the ‘patient.’ I just can’t stomach one more doctor or another treatment plan! If I read one more research study about fibromyalgia, I with begin to tear the hair out of my head. If I hear about one more ‘cure’ I will start screaming and will not be able to stop. I am so done with being chronically ill! DONE! … but it isn’t done with me.

So… I put on my combat boots (yes I have combat boots, doesn’t everyone?) and I begin to think of all the things I’ve learned to use in the last 20 years to ‘combat’ my fibromyalgia symptoms. Since I am not an affiliate with any money making company, I decided to share the things I use. I’m straight up going to tell you what works for me, I call these things my cheaters. Maybe my cheaters will work for you, perhaps not.

*Remember, I am not a doctor nor do I play one on TV. I’m asking you to check with your doctor before using any additional over the counter (OTC) medications.

My Top 20 Cheaters:

  1. Vicks Vapor Rub. Cover your feet with the stuff and put socks on. Body discomfort, colds, congestion, allergies, toenail fungus… (10 days for the nail fungus to clear up). Your mother was right about Vicks Vapor Rub. This stuff works for just about anything!
  2. Essential Oils. Eucalyptus, peppermint, and lavender. Clears up the sinuses and has a calming effect. I use a diffuser. I also use one of those necklaces that holds a small ball of charcoal. You can put essential oils on the ball of charcoal. Some oil brands I like (and have researched) are Plant Guru, Sun Leaf, and there is a roller ball mix called CALM from farm to you. It not only clears my sinuses but helps my mood!
  3. Epsom Salt. I use some in my bath for sore muscles. This stuff is incredible! I also use this to soak my feet when they are painful. There is a fancy one that has lavender in it, and it is nice, but good old everyday Epsom Salt is key!
  4. Dramamine. This works VERY well for dizziness and nausea. If you get the original formula, it will calm you down. If you are already fighting drowsiness, get the less drowsy formula.
  5. Popsicles. Indigestion? Acid Reflux? I just switched from chewing ice after a meal, which works but is hell on your teeth to plain old popsicles. A bit softer on the teeth and work just as well. (If you are low in iron, many times you crave ice, this also helps with that craving.)
  6. Coca-Cola. There are days when eating is out of the question. Don’t reach for the ginger ale, Sprite or 7-up. Slowly sip a REGULAR Coca-Cola. Nausea will go away.
  7. Coca-Cola and a candy bar. Yes, you are reading this correctly. Use these items together if you are experiencing withdrawals from going off medication. I learned this trick from an addiction counselor I used to work with. Now if this is already a part of your daily diet, I’m sorry, this won’t work for you. But if you are not used to this kind of caffeine and sugar rush… it WILL work to ease up the side effects. You will get some much-needed relief.
  8. Magnesium. I take a liquid form. If you have fibromyalgia, you need to be taking extra magnesium. Period. (This is what I take and why.) Our bodies do not make enough. Google ‘magnesium’ and you will understand. Or read all about magnesium from Caz at Invisibly Me!
  9. B12 shots. B12 is another no brainer. (Google away, people!) I take an intramuscular shot. You can take the regular shots or get the vitamins. B12 is like the highway for your body to absorb everything else while it protects this highway too. You will feel less fatigued, less confusion, and overall better if your B12 levels are maintained.
  10. Generic allergy tablets. Calming.
  11. Tylenol PM. (Acetaminophen) Watch your doses! No more than 4,000 mg per day. Calming and takes care of headaches!
  12. Ibuprofen. You can take 800 mg at once, and this is the dose of a pain relieving pill you’d be given with a script. The goal is to not have to do this, but when you are in pain, you do what needs to be done. (Some should not be taking NSAIDs, check your prescriptions for adverse effects!) Always use caution.
  13. Handheld Massager. Restless leg sufferers, this cheater is for you! (Also…#14.)
  14. Weighted Blanket. I use a weighted blanket for Restless Leg Syndrome and anxiety.
  15. Nyquil. We all know Nyquil is our favorite knockout medicine. Use it when you need to. Sleep is healing.
  16. Therapy Belt. I use one for my lower back pain. Get one from Amazon. They are velcro and cost about $15. You should read the directions and always align your hips when putting on one of these belts. (If you have questions, I can help, just ask.)
  17. Clay heating/cooling packs. These are just super nice! Since they are clay, you can squish them and mold them to your body. Walgreens again… they carry these clay packs that can be heated up in the microwave or frozen.
  18. TENs Unit. If this works for you… buy one for yourself! The TENs unit doesn’t work for my fibro, but my husband uses one for his sore back. Not that expensive. Does not require a prescription. Available on Amazon and at Walgreens.
  19. Salonpas. These are little patches you can put on the exact spot you feel pain. (Choose wisely, they are medicated!)
  20. Drugs.com. Put this APP on your phone. It is free and easy to use.

Bonus cheater!!!

#21. A Medication Journal!

You really need to have a journal, especially for your cheaters. Write down what works and what dosages are best for you. Remember to record the medications you take and always the amounts! It doesn’t have to be pretty, just accurate.

Please leave any questions for me in the comment section. Use these cheaters as aids, do not use instead of a medication that is prescribed for you.

And finally, please remember;

 *I am absolutely not a doctor, nurse, or medically trained in any way, except in CPR and first aid! I can breathe the life right back into you while I bandage a head wound… but nothing else!

 

 

img_0992~Kim

Oops, I Did it Again!

First, I must begin with apologies! I am very late in responding to these two awards. I am very honored to receive The Disability Award from Stacey at Fighting with Fibro. I also was awarded The Blogger Recognition Award from Sadje at Keep it Alive. Both these ladies are fantastic bloggers. (Stacy and Sadje, I am very sorry for my tardy response!) Please check out these outstanding bloggers, you will not be sorry!

First, The Blogger disAbility Award! I always have to put a bit of spin on the word disAbility! Sorry, Stace! (It stems from a childhood birth trauma.)

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Stacey would like the following questions answered, then choose nominees to receive the award, and develop new questions for them. Also, the award picture displayed!

OK. I got this. Here we go…

Nominee questions:

  1. What was the first sign of your illness? I was a passenger in a car accident in 1998. I developed acute pain that turned chronic and was diagnosed with fibromyalgia in 2001.
  2. What is your worst symptom, and how do you cope with it? Boy, it depends on the day! I think the thing that annoys me the most is the back pain. I can deal with the fatigue, the overall pain, and all the other little pain pals that come with fibro, but the back pain really can become overwhelming.
  3. What one thing about you has changed as a result of your struggles? Well, let’s see… I lost my career, my home, and my fiance. My bank account went to zero and I … oh! One thing!?!? I am a kinder person. I know myself. That is the most significant change. I have taken the time to get to know who I am and what I stand for. 
  4. What words of advice or encouragement would you give to someone else suffering? Never, ever, ever give up.
  5. Name one good thing that has come out of having a chronic illness? I believe I can connect with others who may be having difficulties with their illness. 
  6. What one thing do you disagree with that is widely accepted as true about your condition? Exercise makes it better! It does NOT. I believe we all benefit from getting some exercise, but it is not a treatment plan for fibromyalgia!
  7. If you could change only one aspect of your illness, what would it be? Other than not having it, the “invisible” part of it. It really is a son of a gun to have and to not be able to point anywhere on your body and say, “See, there it is, right there.”
  8. Name the one thing that works best for you for symptom relief. Truth be told; pain pills. When I have a flare, if I am allowed to treat the pain with an opioid, (yes the “O” word) I am still able to function like a ‘normal’ person, and the flare time decreases with pain management.
  9. Based on your experience, what is one thing that you would tell someone newly diagnosed with chronic illness? The first few years are undoubtedly the hardest. It does get easier. You must grieve for the person you were and welcome the person that you have become because of this illness. Take your time, grieve fully, and embrace this new person. You may even find out that you like this new you!
  10. Why did you start blogging? See answer below.

I will ask my questions and nominate a few bloggers for both awards at the end of this post. Thank you again, Stacey, at Fighting with Fibro, for nominating me for this new award! Very exciting!

I must also say thank you again to Sadje at Keep it Alive! I am very late in response, but I am so appreciative of this Blogger Recognition Award. In fact, it’s one of my favorites!

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Sadje’s Award Rules are as follows:

  • Thank the nominator, and publish a post on your blog about receiving the Blogger Recognition Award. Make sure to provide a link to the nominator’s blog in your post.
  • Give a brief story of how your blog started.
  • Give two pieces of advice to new bloggers.
  • Nominate 10-15 other bloggers for this award, and inform them of their nomination.

How it all started;

As most of you know, I started blogging to regain my ability to write a complete sentence. (Look at me now, you can’t shut me up!) I had gone through a succession of surgeries to remove a blockage in my pancreas caused by a biliary issue. I had seven surgeries in two years. The surgeon told me I would pay for having that much anesthesia in such a short amount of time. I did. Memory loss and an inability to write complete sentences. I got the writing back, (no smart talk, I know my writing leaves many of you in a perpetual state of awe) but I did not regain much of my memory from those two years. (Thank you brain, I really do not want to remember that hellish time.) Then I wrote a book! It is an interactive journal and is sold on Amazon.

Take a peek!

The Shadow Boxers, Fighting Fibromyalgia, Your Personal Journal

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My two pieces of advice for new bloggers;

This is the fun part! I do take this very seriously.

#1. Just blog! Write and write and write. Don’t worry about stats, followers, or opinions. Write from your own experience because that is what makes you a unique blogger. Tell us about your journey!

#2. If you want others to read your blog, read other blogs!!! Don’t forget to comment. I’ve met some incredible bloggers just by following the comments and responding. That is the best part of blogging; the community! You’ll find your tribe. They will be on your side through thick and thin. I love my tribe!

img_1080 ~this much!!!

In response to these two awards, I will nominate eight bloggers who live with chronic conditions to receive both awards! But first, I need to put a little spin on one of these awards. Now you have choices. (The meme police may be nearby if anyone has bail money…?)

Pick the two award pictures you want to be displayed on your blog, and I have ten questions for the following eight nominees.

*Please remember, there is no pressure, no time limit, the awards are yours whether you post or not!

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These eight are incredible individuals who blog and have to deal with chronic illness on a daily basis. I am honored to be a part of their tribe.

I have 10 questions for you! I am borrowing a few questions from Stace because I loved them! (I really want to read YOUR answers!)

  1. What were the first symptoms you experienced?
  2. Name one good thing that has come out of your chronic illness?
  3. What is one thing that is believed to be accurate about your condition that isn’t?
  4. What is the worst symptom you deal with?
  5. What advice would you give to someone who is newly diagnosed?
  6. What is one thing you miss doing before you were diagnosed?
  7. What is the one thing that you do that helps the most with your symptoms?
  8. Do you find the word, “disability,” offensive?
  9. Since your illness, what is the most important lesson you have learned about yourself?
  10. Do you celebrate the 4th of July?

Remember to answer the questions for the Blogger Recognition Award! How did you start blogging and two pieces of advice for new bloggers?

Have fun! Again, thanks to Stace and Sadje! SO incredibly kind of each of you to nominate me for these awards!

img_0992-3~Kim

 

 

A Message in a Song (Shatter Me)

Day in and day out we deal with sameness, what would you give to feel alive again? Look for that light… I promise it’s shining. ~k.

“Somebody shine a light, I’m frozen by the fear in me…”

Shatter Me (lyrics) Lindsey Stirling (ft. Lzzy Hale)