National Fibromyalgia Awareness Day is May 12th!

What is Fibromyalgia? Fibromyalgia Syndrome is a cognitive disorder that affects the central nervous system. This is a disease, and there is no cure. This disease is characterized by widespread musculoskeletal pain, chronic fatigue, depression, fibro fog, and fibro flares. Fibromyalgia is a central nervous system disorder. The brain is continuously firing pain signals throughout the body.... Continue Reading →

This is Fibromyalgia on the Road

We have been on the road for two solid months. (The Stone Begins to Roll.) I can tell you now how this lifestyle is working for my health. Physically and Mentally. First, I want to be straight up with you. RVing was an option the hubby and I found very appealing for us. The actual... Continue Reading →

A Wedding and a Power Ranger

I completely forgot to finish the second part of my original post! To read the first installment, click here. But it really isn't necessary, this is pretty self-explanatory. As we were ready to say our vows, listening to the beautiful singer we had hired for our wedding belt out "I Believe in You and Me."... Continue Reading →

Moody Monday (Visitors)

Visitors . Leaves were falling the air crisp, pain palpable Anger pushed forward. . Winter brought snow one tear fell, another broke free. The sadness of it all. . Its name is Grief it asked to stay. I agreed, but only for a little while. . Cardinals sang in the spring I met Surrender, Grief... Continue Reading →

Good Morning! Feelin’ Fibro?

What do mornings feel like when you wake up with a chronic pain disease like fibromyalgia? I was stumped when people would ask me how it "felt" to have fibromyalgia. "Not good?" Seriously, it is hard to explain. Some say like the flu, others like the flu with a sunburn. Some say it's like being... Continue Reading →

Does Anyone Ever Get It … Bojana Did!

Does anyone who does not have fibromyalgia ever understand what it's like to have it? I believed not. I felt people tried! However, after reading this poem from Bojana, I must withdraw my statement, "In order to get fibromyalgia, you must get fibromyalgia." Not only has this wise woman had to take on the language... Continue Reading →

Look! I Made it Myself!

I was reading some posts on The Mighty. This site now has an App. It's very similar to Twitter, but not on steroids like Twitter! The Mighty site is much more deliberate, somewhat passive. It is chronic illness focused. It can be overwhelming to read people's comments. There is a lot of hopelessness out there.... Continue Reading →

Escaping Through the Fog

I have some thoughts to share with you. I don't know if I am right, but this makes sense to me. How do we escape the chronic pain we are in every day, 24 hours a day? I think the answer is Fibro Fog. Is it possible we are dreading the very fog we should... Continue Reading →

5 Frustrations with Fibromyalgia (by Caz at Invisibly Me)

This is Caz, she writes Invisibly Me... these are the top five frustrations most of us deal with. Many thanks, Caz for being my guest today!  May is Fibromyalgia Awareness Month (with May 12th being awareness day). Today I thought I’d cover some of the frustrations with fibro. Okay, so the frustrations are potentially limitless,... Continue Reading →

Death Must Be Faced

I planned on doing Fibromyalgia Awareness posts all this month, every Wednesday. It was a sound plan. Then my parent's neighbor died, she was very ill. This was expected but when it happened it was still sad. About two days later... my uncle died. He, too, was very ill. In fact, he was in hospice... Continue Reading →

Possible Prevention and Survival; the Inevitable Fibro Flare! (With Terri from Reclaiming H.O.P.E.)

"That’s where pre-planned recovery days come in. Whatever we call those days when we have to take it easy, I’d guess that most of us with fibromyalgia have taken them when we’re having a bad flare, but I’ve found pre-planned recovery days are extremely helpful as well. Whenever I’ve engaged in more activity..." [continue reading, Pre-Planned Recovery Days; One... Continue Reading →

The Slam Dunk Seven Symptoms of Fibromyalgia!

Fibromyalgia comes with so many symptoms and coexisting conditions it is difficult to know if you are suffering from issues directly related to fibromyalgia or a different illness. There are a few common symptoms of fibromyalgia that you can count on being by your side once you are diagnosed. Maybe not all, but here are The... Continue Reading →

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